Patient & Public Involvement
A Friendly Guide to EDI in PPI
Latest Publications Position Papers & Advocacy Patient & Public Involvement Impact Research Governance & Funding Rare Diseases Health Information HRCI Annual Reports Irish Health Research Forum Reports A Friendly Guide to Equality, Diversity & Inclusion (EDI) in Public and Patient Involvement (PPI) Inclusive Involvement: Practical Steps You Can Take Today This guide is about turning […]
The role of health research charities in PPI
Latest Publications Position Papers & Advocacy Patient & Public Involvement Research governance & Funding Rare Diseases Health Information HRCI Annual Reports Irish Health Research Forum Reports The role of health research charities in PPI We’re delighted to release the report of our survey of our members conducted in late 2023 on their role and experiences […]
PPI Facilitation Workshop 7th March 2024
HRCI is inviting our member charity representatives to register for a PPI Facilitation workshop, taking place in the HRCI offices, Camden Row, Dublin 8, on Thursday, March 7th, 2024. The workshop will be taking place in person and will be a full day event, to finish at 4pm. The aim of the event is to […]
HRCI / PPI Ignite Network – Charities & Researchers Partnering Guide
Guidance for charities, other civil society organisations, researchers, research institutions and funders, to achieve successful research partnerships. This publication delves into the immense value that arises when charities and researchers partner to achieve societal benefit from research. The amalgamation of their distinct expertise and wisdom holds the potential to improve lives. However, despite the promise, […]
Making a Start: A toolkit for research charities to begin a PPI relationship
How do we begin the conversation about research involvement with patients and the public? This new PPI toolkit helps health research charities and others starting on the journey to tackle this challenge. It offers particular guidance on facilitating a first workshop with PPI contributors. It was developed in partnership by TCD PPI Ignite, HRCI and […]
Report: Do patients and the public trust researchers with their health data?
Do patients and the public trust researchers with their health data? In 2019 we held a small workshop with patients and members of the public to capture their views on how they wish their data to be treated, for the purposes of health research. Download our pdf to see the results of our findings. Do […]
Evidence for Advocacy: A Practical Guide (2019)
On 30 May 2019, a group of patient-focused organisations and other interested parties attended Health Research Charities Ireland (at the time called the Medical Research Charities Group) ‘Evidence for Advocacy’ seminar. They heard diverse perspectives from experts in research, policy and public relations (PR) and were also presented with case studies from a number of charities sharing refreshingly honest accounts of their experiences. By focusing on advocacy through a research lens, the event highlighted the power of taking an evidence-informed approach to support advocacy campaigns and to guide efforts to improve health.
This practical guide follows on from that seminar and draws on the information presented by the speakers, contributions from the floor, as well as the expertise of the authors and Health Research Charities Ireland (HRCI). We are very grateful to all who contributed.
Supporting patient and public involvement in industry-led research: guidance for charities
HRCI has partnered with the Charities Research Involvement Group in the UK, to produce guidance on PPI in Industry. The guide was launched in September 2019 and focuses on how to overcome the issues that health research charities often face when encouraging or participating in industry-led PPI and offers practical advice on how to do […]
DCU PPI Ignite Seminar Slides
Wednesday, March 27th, 2019 DCU PPI Ignite- PPI in Research Communicating and managing relationships with the Public and Patients: Presentations by Dr. Avril Kennan And Dr Laura Brady
The language of patient and public involvement and how not to mess it up
October 2018 Language is perhaps the most valuable tool that we have as humans. It is important in not only conveying our meaning, but also as an instrument of positive change. During numerous recent meetings I have found myself immersed in discussion on the language of patient and public involvement (PPI). These discussions have left […]